Sometimes: Be Your Own Advocate

The new list of compassionate allowances for Social Security benefits includes Alzheimer’s disease, rather unexpectedly. Although the national associations had been lobbying for this for years, what finally tipped the scale was a patient who went to a SSA panel meeting on the compassionate allowances, and spoke from the heart about his 14 month struggle to get benefits after his diagnosis. Sometimes, it pays to be your own advocate.

The list previously had 50 conditions — 25 rare diseases and 25 cancers. The change adding 38 conditions is effective March 1

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